The Knowledgeable Patient Communication and Participation in Health CBS- Cochrane Book Series

Learn how to place communication and participation at the heart of evidence-based healthcare

The Knowledgeable Patient: Communication and Participation in Health sits at the forefront of the challenging, changing 21^st century landscape. The 'knowledgeable patient' as an individual can take many forms: patient, family carer, consumer advocate, or member of the public interested in health issues. In each of these roles, knowledgeable patients interact with health professionals by asking questions about the evidence for treatment, seeking support, exchanging views, and contributing experiences and new ideas on how to improve the health system.

Drawing from several research paradigms, The Knowledgeable Patient is an essential guide to a new era of complex healthcare. Integrating consumer stories and evidence from systematic reviews, it examines key communication and participation issues in a range of contexts, including:

• surgery
• safe medicine use
• chronic disease self management
• the complexity of multimorbidity
• notification of rare disease risk.

The Knowledgeable Patient is international in scope with researched examples spanning living in the community, health service treatment, governance, and policy making. It provides health professionals with new ideas, concepts, evidence, and practical tools to understand the central role of communication and participation to a well-functioning health system.   It is an ideal reference for undergraduate and postgraduate students studying the health sciences.

Watch a video about The Knowledgeable Patient: Communication and Participation in Health from the author, Sophie Hill: bit.ly/xNYCqG

Preface, ix

Acknowledgements, xii

Chapter 1 Does communication with consumers and carers need to improve? 1
Megan Prictor and Sophie Hill

Chapter 2 A new conceptual framework for advancing evidence-informed communication and participation, 12
Sophie Hill and Mary Draper

Chapter 3 Interventions for communication and participation: their purpose and practice, 27
Sophie Hill, Dianne B. Lowe and Rebecca E. Ryan

Chapter 4 Identifying outcomes of importance to communication and participation, 40
Sophie Hill, Dianne B. Lowe and Joanne E. McKenzie

Chapter 5 Communicating risk and risk statistics for preventing chronic disease, 54
Sophie Hill, Adrian G.K. Edwards and Dianne B. Lowe

Chapter 6 What does participation mean? Reshaping our understanding of the meaning of surgery, 67
Sophie Hill and Jessica Kaufman

Chapter 7 Disclosure: a case study of communication about medically acquired risk for a rare disease, 82
Rebecca E. Ryan, Jessica Kaufman and Sophie Hill

Chapter 8 How I used a systematic review from The Cochrane Library, 94
Helen Dilkes, Jessica Kaufman and Sophie Hill

Chapter 9 Evidence and resources for systems decision-making: improving the experience of health and treatment, 105
Dianne B. Lowe, Sophie Hill and Rebecca E. Ryan

Chapter 10 Looking at online health information more critically, 115
John Kis-Rigo

Chapter 11 Learning to communicate, 125
Megan Prictor, Simon Lewin, Brian McKinstry and Jessica Kaufman

Chapter 12 Getting the most out of research: using what we know, 143
Dell Horey, Jessica Kaufman, Sophie Hill

Chapter 13 Research agendas for knowledgeable patients, 151
Ruth Stewart and Sandy Oliver

Chapter 14 Managing multiple health problems: is there evidence to support consumer-focused communication and participation? 161
Rebecca E. Ryan and Sophie Hill

Chapter 15 Partners in care – an evidence-informed approach to improving communication with women in a hospital setting, 173
Sophie Hill, Maureen Johnson and Mary Draper

Chapter 16 Building health-literate societies, 184
Sophie Hill, Dianne B. Lowe, Chaojie Liu and Nancy Santesso

Chapter 17 Tools for building research capacity and knowledge transfer, 196
Helen Dilkes, Jessica Kaufman and Sophie Hill

Chapter 18 Emerging technologies for health communication, 208
Yannis Pappas and Josip Car

Index 218